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Living and Exercising with Lymphedema

Blog | December 04, 2014

Hi Zuzka,
I felt that I had to personally thank you for all that you do for us Zwarriors. I am new to the zgym & only discovered you on youtube a few months ago.Your zwows were the best workouts that I’ve come across.I did the ones that I was able to do,you see I suffer from a condition called Primary lymphedema,which means that I have a faulty lymphatic system that doesn’t remove the toxic protein rich fluid from my body,the fluid builds up in the lower extremity causing immense swelling & pain.I consider myself lucky that for most part I can keep it under control by following the correct treatment,eg manual lymphatic drainage,wearing multi-layer bandages or compression garments,elevation,exercise & healthy eating habits.If I donยกt follow all of these treatments my condition will deteriorate rapidly & my leg would become difficult to treat.This condition compromises my immune system & I have to be careful of of many things,simple things,like shaving,scratches from my pets,colds,coughs all could lead to a serious infection called cellulitis.

 

Whats brings me to write to you is because I’ve just returned from a trip & I had to fly.Flying or standing for long periods of time results in massive swelling & pain.While I was away I couldn’t workout, I had little space & internet was slow however I walked everywhere, but still it isn’t the same. I was gone for only 6 days & when I returned home, my leg was in poor shape. The following day, I went headlong into a cardio shred workout & completed to the best to my ability but the pain & soreness just about “killed me” for that day & the next I had to stop, I felt awful, it wasn’t until this morning that I thought, I will do power yoga 2 & to my amazement the pain started to ease as I stretched ( stretching is good for the lymphatic system)ย & by the end my mind & body felt a lot calmer but what you said at the end of the video, let me quote “Everyday doesn’t have to be an intense workout” I finally realized that it’s o.k if I can’t do everything that you do, I can modify to my needs & I’m still getting my workouts done. My leg (I name her “Chunkie”) sometimes is so heavy from the fluid build up, I struggle with the extra weight doing some of the leg exercises, you see I’m stubborn & want to keep your pace.

 

Sarah_post

 
I enclose a photo of “chunkie” after standing for several hours without any elevation.

Lymphedema is not well known, yet thousands & thousands worldwide suffer from this condition men & women, unfortunately most Breast cancer & Ovarian cancer survivors will develop lymphedema. It’s a terrible condition if it goes untreated, it will turn into Elephantiasis, I have quite a few members who suffer from this, the reason being, insurance doesn’t cover our treatment & compression garments & drainage therapy cost a fortune. My Facebook group is called (it’s a closed group) I Live With Lymphedema/Lymphoedema But I Won’t Let It Rule My Life, and we have about 1 thousand members.
Thank you so much for what you do & may your Zgym continue to grow & prosper.
Regards,
Sarah Barnes.

Comments Add Comment

  1. private avatar image

    Private Member  | 

    Thank you for sharing your story Sarah. It’s easy to forget how lucky we are when our bodies are healthy. Your personal commitment and drive are inspiring. Glad you’re part of our community.

  2. private avatar image

    Private Member  | 

    Thank you for sharing Sarah. You are a true warrior ๐Ÿ™‚

  3. private avatar image

    Private Member  | 

    Hello Sarah, I’m wondering have you ever tried T-Tapp? It’s a unique workout system developed by Teresa Tapp. I use her workouts when I start to feel pain in my back or when I wake up and I’m really stiff, I do a few PBS (primary back stretch) and it works wonderful. So I use it as a restorative workout for my spine but it also helps activate the lymphs. Google it if you’re interested.
    Happy Holidays! ๐Ÿ™‚

  4. private avatar image

    Private Member  | 

    Thank you Sarah! You’re a true inspiration.

  5. private avatar image

    Private Member  | 

    Thank you for the link it filled in a lot of gaps for me and frustrates me that the doctors brushed off me telling them I fell off our deck less then a couple of weeks prior to my leg starting to swell, I am thinking that was the trigger even though I was treated last year. I guess it was going to potentially going to happen it was just a matter of when. I had no idea I had to be careful of infection no one has mentioned that to me I am still waiting for compression stockings yay another phone call chasing up….I am so happy you told your story thank you ๐Ÿ™‚

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